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Wessex Antenatally Detected Anomalies Register (WANDA)

 

 

A historical population-based register which covered births to mothers resident in the Old Wessex region with a strong clinical link. During its active period, WANDA followed the protocol of the EUROCAT network of registries and was referred to as "UK, Wessex". Further information can be found in its EUROCAT profile.

 

History and Funding

The Wessex Antenatally Detected Anomalies Register (WANDA) was started in 1988 as a local database. In 1994 funding was obtained and the regional register established under the auspices of the Wessex Clinical Genetics Service. Funding was provided by each of the 10 districts covered, through the genetics budget, and regular multi-disciplinary meetings were held in each district to enhance data collection and provide clinical links and liaison between each of the hospitals, Clinical Genetics  and the Fetal Medicine department in Southampton. 

 

The registry joined EUROCAT in 2002, and sent backdated data from 1994. WANDA was an active member of BINOCAR (British isles Network of Congenital Anomaly Registers). The primary aims of WANDA were:

• to improve communication between all clinicians involved in the care of pregnant women and their babies
• to monitor clusters and provide relevant data to allow further investigation and research; to evaluate new and established prenatal screening tests
•  to monitor incidence and population trends of selected malformations
•  to provide data for research into the aetiology and natural history of certain anomalies and for the investigation of potential teratogens
•  to provide data for health care policies and planning.

 

WANDA was taken over by Public Health England in 2015 who moved its operations to Bristol where it has been amalgamated with the SouthWest Register. WANDA therefore has 22 years of data from 1994-2015 inclusive. This is still in use for research purposes.

 

 

 

Register details		Contact details
Register type: EUROCAT member: Years active: Annual births: Annual cases notified:	Population based Yes 1994 - 2015 31,000 1000	Name:   Address:           Telephone: Email: Website:	Diana Wellesley Consultant in Clinical Genetics Wessex Clinical Genetics Service Princess Anne Hospital Coxford Road Southampton SO16 5YA +44 (0)2381 206167 [email protected]

© BINOCAR, 2011