BINOCAR launches its second annual surveillance report on congenital anomalies
2 August 2012
BINOCAR has launched the second annual surveillance report on congenital anomalies using data from six regional registers (CARIS, CAROBB, EMSYCAR, NorCAS, SWCAR, WANDA) for 2010. This report contains information on the number and prevalence of congenital anomalies, trends over time, timing of diagnosis and outcome, rates of terminations of pregnancy, prenatal detection rates of FASP anomalies, perinatal mortality, survival to one year of age, maternal age and geographical variations. There are also separate chapters using data from the two disease specific registers, NDSCR which has data on Down, Patau and Edwards syndromes for England and Wales and the CRANE database which has data on cleft lip and palate for England, Wales and Northern Ireland.
To view the full report, click here.
To view the executive summary, click here.
To view the press release, click here.
Media coverage of the report
BMJ - Researchers call for national funding to monitor all birth defects
Healthcare Today - Birth defects not being detected
MedicalXpress - Lack of nationwide surveillance may lead to clusters of congenital anomalies going unnoticed
OnMedica - Vast majority of birth defects not being picked up
Science Codex - Lack of nationwide surveillance may lead to clusters of congenital anomalies going unnoticed
Science Newsline - Lack of Nationwide Surveillance May Lead to Clusters of Congenital Anomalies Going Unnoticed
The Independent - Birth defects 'not being adequately monitored'