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British and Irish Network of
Congenital Anomaly Researchers

BINOCAR launches its first annual surveillance report on congenital anomalies

14 December 2011

BINOCAR has launched the first annual surveillance report on congenital anomalies using data from five regional registers (CARIS, CAROBB, EMSYCAR, NorCAS, WANDA) for 2009.  This report contains information on the number and prevalence of congenital anomalies, trends over time, timing of diagnosis and outcome, perinatal mortality, survival to one year of age, rates of terminations of pregnancy and regional variations.  There are also separate chapters using data from the two disease specific registers, NDSCR which has data on Down, Patau and Edwards syndromes for England and Wales and the CRANE database which has data on cleft lip and palate for England, Wales and Northern Ireland.

 

To view the full report, click here.

 

To view the executive summary, click here.

 

To view the press release, click here.

 

 

Media coverage of the report

 

Active Quote.com - One in 50 babies have a birth defect, more than double previous estimates

http://www.activequote.com/health-insurance/news/One-in-50-babies-have-a-birth-defect-more-than-double-previous-estimates.aspx

 

Daily Mail - One in 50 babies has a birth defect as detailed new study shows numbers nearly DOUBLE previous estimates

http://www.dailymail.co.uk/health/article-2073881/One-50-babies-birth-defect-detailed-new-study-shows-numbers-nearly-DOUBLE-previous-estimate.html

 

e! Science News - Report finds 1 in 50 babies has birth defect and highlights worrying gaps in regional monitoring

http://esciencenews.com/sources/physorg/2011/12/14/report.finds.1.50.babies.has.birth.defect.and.highlights.worrying.gaps.regional.monitoring

 

Express - Birth defects rates rising

http://www.express.co.uk/posts/view/289786/Birth-defects-rates-rising

 

Huffington Post - One in 50 babies born with birth defect, report shows

http://www.huffingtonpost.co.uk/2011/12/14/one-in-fifty-babies-born-with-birth-defect_n_1147689.html

 

Independent - One in 50 babies has 'birth defect' in England and Wales

http://www.independent.ie/lifestyle/parenting/one-in-50-babies-has-lsquobirth-defectrsquo-in-england-and-wales-2963018.html

 

ITN - Up to 2 per cent of babies suffer birth defects

http://www.itn.co.uk/home/35143/One+in+50+babies+'suffer+birth+defects'

 

Make for Mums - More birth defects reported, but they aren't on the rise

http://www.madeformums.com/baby/more-birth-defects-reported-but-they-arent-on-the-rise/20678.html

 

Medical Xpress - Report finds 1 in 50 babies has birth defect and highlights worrying gaps in regional monitoring

http://medicalxpress.com/news/2011-12-babies-birth-defect-highlights-gaps.html

 

MSN News - One in 50 babies 'had birth defect'

http://news.uk.msn.com/health/articles.aspx?cp-documentid=160058086

 

Nursing Times.net - One in 50 babies has birth defects

http://www.nursingtimes.net/nursing-practice/clinical-specialisms/midwifery/one-in-50-babies-has-birth-defects/5039294.article

 

Parentdish - One in 50 babies has a birth defect, wide-ranging study reveals

http://www.parentdish.co.uk/2011/12/14/one-in-50-babies-born-with-defects-study-reveals-downs-syndrome-cleft-lip-spina-bifida/

 

The Telegraph - One in 50 babies has a birth defect: research

http://www.telegraph.co.uk/health/healthnews/8953930/One-in-50-babies-has-a-birth-defect-research.html

 

Yahoo News - One in 50 babies 'has birth defect'

http://uk.news.yahoo.com/one-50-babies-birth-defect-000827883.html

 

Yorkshire Post - Birth defects in babies 'more than estimated'

http://www.yorkshirepost.co.uk/news/at-a-glance/main-section/birth_defects_in_babies_more_than_estimated_1_4056914