BINOCAR
British Isles Network of Congenital Anomaly Registers
 
Home
Registers
Conference
Standards
Research
Links
Management
Diary
Press
Contact
  International Clearinghouse for Birth Defects Monitoring Systems ICBDMS
The website is a non-governmental organisation in official relations with the World Health Organisation representing more than 30 malformation monitoring programs world-wide. Member programs are actively engaged in the systematic collection and analysis of the data for the comprehensive monitoring of congenital malformations. The site contains details about the administration of ICBDMS, many links to affiliated registers, information on the annual meeting, papers and reports, and a web guide on birth defects.

World Health Organization
The site for the World Health Organization (WHO) has information on a broad range of information relating to health, including congenital anomalies.

EUROCAT
The European Concerted Action on Congenital Anomalies and Twins (EUROCAT) is an EU initiative to which a number of local registers contribute data. EUROCAT carries out a programme of collaborative research. The website has details of the organisation along with details of members, some prevalence information, publications and details of upcoming news and events.

ISD Scotland
Information Statistics Division is the leading source of health data in Scotland and offers a topic based service, providing the latest news and publications as well as a range of other topics and links to related sites. The site has information on congenital anomalies collected in Scotland including links to the latest report 'Babies with anomalies - a Scottish Overview'.

Contact a Family
An award winning website which provides information and contacts to families of children with rare medical disorders. Has a comprehensive library of conditions continuously updated by specialists.