| EUROCAT |
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EUROCAT is a European network of population-based registries for the epidemiologic surveillance of congenital anomalies.
- Started in 1979
- More than 1.5 million births surveyed per year in Europe
- 43 registries in 20 countries
- 29% of European birth population covered
- High quality multiple source registries, ascertaining terminations of pregnancy as well as births
- WHO Collaborating Centre for the Epidemiological Surveillance of Congenital Anomalies (see www.who.int/genomics)
The following nine BINOCAR registers are full members of EUROCAT:
- CARIS (Wales, UK)
- CAROBB (Thames Valley, UK)
- Cork & Kerry (Cork & Kerry, Ireland)
- Dublin (Dublin, Ireland)
- EMSYCAR (East Midlands and South Yorkshire, UK)
- HSE-SE (South East, Ireland)
- NorCAS (Northern England, UK)
- SWCAR (South West England, UK)
- WANDA (Wessex, UK)
NDSCR is an affiliate member as it only collects data on Down, Edward and Patau syndromes.
Data from the above BINOCAR registers are available, together with data from all the other European registers, on the EUROCAT website in the form of:
- Prevalence rate per 10,000 births for 95 different congenital anomaly subgroups according to register and selected time period
- Perinatal mortality associated with specific congenital anomaly subgroups for full member registries combined
- Fetal death, early neonatal, perinatal and neonatal mortality associated with all congenital anomalies per country
- Rate of terminations of pregnancy for fetal anomaly following prenatal diagnosis (TOPFA) and rates of perinatal deaths per 1,000 births by country
- Prenatal diagnosis of 7 selected congenital anomlies by registry
- Gestational age and prevalence rate (per 1,000 births) at TOPFA for all anomalies
For more information, visit the EUROCAT website at www.eurocat-network.eu.
