BINOCAR Management Committee
The BINOCAR Management Committee meets two or three times per year to review issues such as IT security, confidentiality, consent, data quality and the enhancement of data collection across the British Isles. In addition the Committee organises a biennial scientific meeting to which any interested parties are invited.
The Newlife Foundation for Disabled Children is closely invovled with BINOCAR and has a representative on the Management Committee. Information is provided via the Newlife Foundation or by individual registers as requested by parental support groups for those with specific anomalies.
The members of the BINOCAR Management Committee are:
- Sheila Brown, Newlife Foundation for Disabled Children
- Elizabeth Draper (Chair), East Midlands & South Yorkshire Congenital Anomly Register (EMSYCAR)
- Jane Fisher, Antenatal Results and Choices (ARC)
- Jenny Kurinczuk, Congenital Anomaly Register for Oxfordshire, Berkshire and Buckinghamshire (CAROBB)
- Joan Morris, National Down Syndrome Cytogenetic Register (NDSCR)
- Judith Rankin (Secretary), Northern Congenital Abnormality Survey (NorCAS)
- Rosie Thompson, South West Congenital Anomly Register (SWCAR)
- Ann Tonks (Treasurer), West Midlands Congenital Anomaly Register (WMCAR)
- David Tucker, Congenital Anomaly Register and Information Services for Wales (CARIS)
- Diana Wellesley, Wessex Antenatally Detected Anomalies Register (WANDA)
- Catherine Whibley, Yorkshire and the Humber Congenital Anomalies Register (YHCAR)
Download the Terms of Reference of the Committee (PDF | 8KB).
